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Pregnancy and Long QT Syndrome

Long QT syndrome (LQTS) is the most common cause of death due to heart rhythm problems in infants, children and young adults. Before they are born, babies with LQTS can have the same heart rhythm problems as infants, children and young adults with LQTS. Treatment of LQTS can save lives.

Primary Investigator: Bettina Cuneo, MD

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Fetal Atrial Flutter & Supraventricular Tachycardia (FAST) Therapy Trial

Although supraventricular tachycardia (SVT), including atrial flutter (AF), are the most common causes of intended in-utero fetal therapy, none of the medication used to date has been evaluated for their effects on the mother and her baby in a randomized controlled clinical trial (RCT). In the absence of such evidence, there is no consensus for the optimal management. The Fetal Atrial Flutter and Supraventricular Tachycardia (FAST) Therapy Trial is a prospective multi-center trial that addresses this knowledge gap to guide future fetal AF & SVT therapy to the best of care.

Primary Investigator: Edgar Jaeggi, MD

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International Fetal Cardiac Intervention Registry

The aim of IFCIR, the International Fetal Cardiac Intervention Registry, is to improve the care and outcome for mothers and babies when the pregnancy is complicated by congenital heart disease in the fetus. Specifically, through this website we share our experiences, protocols, technical aspects and outcome data for fetal patients with congenital heart disease potentially amenable to intervention before birth.

IFCIR represents an independent group of medical centers and healthcare professionals, endorsed by members of the leading scientific organizations of physicians working in this field.

Primary Investigators: Anita J. Moon-Grady, MD, FAAP, FACC, FASE, Dick Oepkes, MD, PhD

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