Get full access to Fetal Heart SocietyBecome A MemberGet full access to FHS

There are a number of organizations – both national and local – dedicated to congenital heart disease.  They are great resources for learning more about congenital heart disease, networking with other affected families, and joining in advocacy efforts.

———————————————————————————————

Overview of Fetal Echocardiography

This includes an overview of CHD, what a fetal echocardiogram is, and who should get one

Link to Specific Congenital Cardiac Lesions

Links to normal cardiac anatomy and physiology, as well as to 17 of the most common forms of CHD

——————————————————————————————–

Mended Little Hearts

A peer support group promoting education and advocacy for families affected by CHD

——————————————————————————————–

American Academy of Pediatrics – Congenital Heart Public Health Consortium

Video Series of Q&A regarding common topics in Congenital Heart Disease

——————————————————————————————–

Centers for Disease Control and Prevention

Fact Sheets with Color Diagrams of many forms of congenital heart disease

——————————————————————————————–

National Pediatric Cardiology Quality Improvement Collaborative (NPCQIC)

A collaborative of clinicians, researchers, and parents using quality improvement tools to improve outcomes for HLHS and other complex forms of congenital heart disease.


Congenital Heart Surgery Database – Public Reporting

The Society of Thoracic Surgeons hosts a Congenital Heart Surgery Database to which Congenital Heart Centers can publicly report their outcomes.