Contributions from private donors, institutional sponsors, or corporate sponsors will gladly be accepted to help support the Fetal Heart Society’s Mission and Aims. Your support will allow us to achieve our goal of improved care for fetuses with cardiovascular disease through multicenter collaboration across subspecialties and disciplines If you are considering a donation and have questions, please…
The goal of the Fetal Heart Society Research Collaborative is to enhance the quality of fetal and perinatal research by facilitating collaborative multicenter efforts among fetal cardiovascular researchers from any relevant discipline. Research initiatives may include retrospective, prospective, quality assurance/outcomes studies or large case series.
The Research Collaborative structure will allow for more streamlined conduct of multicenter research initiatives by providing members with the following:
- General template documents needed to conduct multisite collaborative research:
- FHS Concept and Full Research Proposal Guidelines
- Documents for use in Institutional Review/Ethics Board submissions
- Business Associate Agreements and/or Data Use Agreements
- Centralized image and clinical data storage repositories for present and future research studies including:
- Data management services provided at the University of Utah DCC
- Repository for de-identified patient images (ultrasound, MRI)
- Web-based clinical database access, design, and maintenance (OpenClinica)
- Individualized, organized review of research proposals, structured mentoring support for proposal revision and refinement
- Guidance regarding publication in quality journals and conduct of ancillary studies arising from completed projects
Membership in the Fetal Heart Society is required for participation in the Research Collaborative; both Active and Affiliate Members can participate, but only Active Members can propose and lead projects. All colleagues in the field of fetal and pediatric cardiovascular medicine are encouraged to join.
To see a list of current studies and brief overview of each project, click here.
For any specific questions, please contact the FHS Research Collaborative Committee Chair or any current member of the Committee. For full access to active study protocols and documents necessary for proposing or joining a research initiative, become a member of the FHS.
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